Dying to matter #WCMTLD

I spent today, International Day of People with Disability 2017, in Brisbane. Well that’s not strictly true, I spent some of it in Brisbane, some of it travelling to the Gold Coast and a significant chunk of it having an incredibly pleasurable lunch and walk on the beach/paddle in the shallows and chat with Sally […]

Youth of today #cholangiocarcinoma

Seven and a half years ago I learnt about a bile duct for the first time; in the days running up to my Dad’s 60th birthday he’d been a bit itchy and had started turning yellow. An amazingly astute GP (with personal experience of what was to come), swift turnaround in our local hospital and […]

Life after Bobby: time passing

This weekend was/would have been Dad’s 67th birthday. I mentioned it to a few people on twitter and got a couple messages from people asking how I was and mentioning I’d not blogged lately, when I checked back this post is long overdue. What to share really, well at the risk of stating the obvious, […]

The blackest of Wednesdays

It was five years ago today, yet I remember nearly every bit of it as though it was yesterday. I can recall his name, his walk or rather his strut, his voice and his manner, perhaps one blessing in disguise is that I can’t remember his face. It’s odd that but I often wonder whether […]

The moment of truth #hairhack

Wow, what a day. I pride myself on being quite good with words, they’re my preferred tool, and usually I can sit down, think for a moment and the fingers just start typing and the words come. Not today. Today I can’t find the right words, or rather I can find the words, but not […]

Asking for help

I watched a TED talk by Amanda Palmer last week, it was doing the rounds on facebook in one of those articles that is guaranteed to put me off! Enough people I respect commented or shared it for my interest to be peaked and I’m really glad I watched it. I would highly recommend the […]

Life after Bobby: Being remembered #yodo

18 months and a day, 78 weeks, 13 thousand one hundred and twenty eight hours, that’s how long it is since Dad died. There have been 547 sun sets and 547 sun rises since Dad left us. Well, true to form, this isn’t an easy calculation to make because technically speaking I think it should […]

Meeting a living (and dying) legend #yodo

Last night I had the absolute honour to attend the Dying Matters annual lecture at the Royal College of Physicians. The theme You Only Die Once: Kate Granger’s story. Kate sent me a DM asking if I’d like to come a couple months ago, and I can honestly say I wandered around with a grin […]

In defence of the selfie

Short, random post for you all. The selfie (word of the year for 2013) has been getting some schtick lately, not least because Barrack Obama decided to take one at Nelson Mandela’s funeral. There’s a whole other blog post right there, but I’ve been thinking a lot about selfies, what they represent, and whether they’re […]

Patient Opinion – partners not pen pushers

Last week there was a little storm brewing in my twitter stream. Patient Opinion, who have been an active participant on social media and have been using it to power good for a number of years, were suddenly inundated with concerns for their future. Tim Kelsey, the National Director for Patients and Information at NHS […]